A controversial new test means disorder will become extinct from ‘eugenics,’ doctors say.
A new, simple way to detect Down syndrome in a fetus means the condition will be virtually extinct — but not without a great deal of controversy, experts say.
Last month, San Diego-based Sequenom released a test that allows doctors to screen for the most prevalent type of Down syndrome with only a blood test from the mother. The screening is available in 20 cities and is expected to hit New York soon. Two other companies have plans to release similar tests next year.
“What you end up having is a world without people with Down syndrome,” says Paul Root Wolpe, director of the center for ethics at Emory University. “And the question becomes is that a good thing or bad thing?”
I read articles like this and I wonder…
Will words like that always leave me breathless, as though I’ve been punched in the gut?
Then I remember the truth.
I can’t imagine my life without Charlie.
And in the last few weeks I’ve shared stories written by family and friends who feel the same way.
We can’t imagine life without Charlie.
Charlie, our second son, a grandson, a great-grandson, a brother, a student, a cousin, a nephew, a neighbor, a friend, a little boy, who yes, has Down syndrome. If I could, I’d love nothing more than to share those personal stories with a woman who has just received a prenatal diagnosis for Down syndrome.
I am so thankful that we get to both live out and share this truth.