We’re on the Radio

31 for 21 Challenge – Day Nine

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How’s this for advance notice?  This morning at 9:45 a.m. you can tune into 1280 KIT and listen to us talk for the Children’s Miracle Network Radiothon for Children’s Village.

I can’t help but find this slightly ironic/interesting, as my first ‘real’ job was working for the Foundation for Seattle Children’s (then Children’s Hospital and Regional Medical Center) right out of college.  Our department focused on fund-raising and one of our first big projects was their first ever radiothon.  I vividly remember helping to coordinate with other families so that they could share their stories and experiences.  It will be interesting this time to be on the other side – to be the parent of the child with a disability.  To be talking about my own child.

We have been asked to share our experiences at the Village and I have only good things to say.  The Village has helped to coordinate Charlie’s multiple therapies for us – physical, occupational and speech – all under one roof.  We also go there to see his pediatric nutritionist.  And when Charlie was first born we went to the Village to see a Pediatric Cardiologist from Seattle Children’s.  It was so wonderful to not have to travel for certain appointments, but to still be assured that instead, the best doctors were coming to see us.  We are so blessed to have the Village in our home town – if we lived anywhere else we would have to coordinate our own appointments, figure out which therapists to see and travel to see specialists.

We are so fortunate to have such a great resource right in our own community.  But I know that it comes with a price – even with our ‘fancy’ private health insurance, most of Charlie’s therapies aren’t covered and I can assure you that the costs add up.  And I know that we aren’t the only family that is in this situation – we don’t qualify for any ‘help’ or services from the state, but yet our insurance doesn’t cover neurodevelopmental therapies.  This is a growing issue in our state that I think will become even much bigger in the next few years (think Autism – neurodevelopmental therapy is key.)  That is why fundraisers like this are so important – to help keep up with the demand of services while also covering the gap of costs that insurance won’t.

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3 thoughts on “We’re on the Radio

  1. Hi Libby! My mom passed your blog along to me. I cannot even STAND how ADORABLE your boys are!!! Henry looks like so much fun and Charlie is (by far) the cutest little baby boy I have ever seen in my life…and I am not joking. What a blessing they must be. I would love to come give them kisses if we are ever in town :-)

  2. From what I understand, NJ is a great state to live in with regards to a disabled child. We have early intervention that is covered (I think) completely by the state.
    Come on over to NJ, we would love to have you!!!!

  3. Libs, I look forward to your post as much as my morning coffee! That sounds trivial but most of my friends will not even talk to me until I have had it. :) What I love is that some days the post is entertaining and some days educational (like today) and some a little of both. You are such a fantastic person and this morning’s radio show brings you full circle in some aspects. You will do great!! Becki

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